Updates

It's been awhile since I've written anything on here. I now know for sure that I am sensitive to the sun. How do I know this? Well, being outside for one weekend in the blazing hot sun gave me heat exhaustion. I was weak, nauseated and feverish. I thought I drank enough but I guess not. I tried it for another weekend with the same result although definately not as severe as the first reaction. Anyways I am now also blessed with a reaction to the sun. Every time I spend too much time outside I get rashes on my skin. I mostly get them where the skin was exposed but I occasionally get them on my thigh which is usually covered up.





Also my left leg seems to have improved a wee bit. It still feels a little numb and I have pain in my calf but I think it will eventually get better. Please! Other than my normal overwhelming fatigue and pain I'm doing okay. I'm surviving and living life. I still force myself to get out and do normal activities (although sometimes it's really hard!). Life goes on...